Data from Pharmawand - Curated by EPG Health - Date added 19 September 2018

Novartis, Amgen and Banner Alzheimer's Institute (BAI), in association with Alzheimer's Disease International (ADI), announced results from the largest global survey to date investigating perceptions of Alzheimer's disease. Findings show that most adults (62%) are worried that they may develop Alzheimer's, while nearly the same proportion believe it is likely a cure will be developed in their lifetime (60%). This World Alzheimer's Month, Novartis, Amgen, BAI and ADI are raising awareness about how volunteers can take part in clinical studies to benefit Alzheimer's research, potentially themselves and future generations.

Alzheimer's is the leading cause of dementia, a disease affecting 50 million people worldwide and this number is expected to triple by 2050. The survey of more than 10,000 people across 10 countries revealed that 91% believe the solution to tackling diseases lies in medical research and 79% are willing to participate. However, three-quarters (75%) have no idea how to get involved in medical research. In addition, 78% of adults are willing to get genetically tested to identify their potential risk of developing Alzheimer's.

"At present, there is no cure and limited treatment options for Alzheimer's, but this survey clearly shows that people are willing to participate in research to help treat and to hopefully find a cure," said Paola Barbarino, Chief Executive Officer at ADI. "We need to demystify and remove awareness barriers to participation in medical research, making all suitable candidates aware of how they can get involved." Worldwide, more than 400 clinical studies are recruiting in Alzheimer's. However, slow enrollment is a costly and common obstacle that undermines medical research. There is a need for more people to volunteer to advance scientific discovery.

September 2018 marks the 7th World Alzheimer's Month and represents a chance for people to raise awareness, fundraise and find out more about how they can participate in research. In addition to the global survey results, ADI will also launch their World Alzheimer Report 2018 entitled The state of the art of dementia research: new frontiers, which looks at the hopes and aspirations, the barriers and enablers to improving dementia research globally. More information on the report can be found here www.alz.co.uk/worldreport2018.

Novartis, Amgen and BAI are sponsors of the API's Generation Program, which is evaluating investigational treatments to help prevent or delay the onset of Alzheimer's. The Program is enrolling volunteers aged 60-75 who are at higher risk of developing Alzheimer's but do not currently have or show signs of the disease. Information can be found at www.generationprogram.com. Learning about increased genetic risk as part of a clinical study can result in a unique emotional response; pre- and post-test genetic counselling is often recommended to help manage these responses and provide information on implications for the individual and their family. Information about clinical trials is widely available online and from local patient advocacy groups. Details of Alzheimer's clinical studies can be found on the ADI website www.alz.co.uk/clinical-trials/find and the Alzheimer's Prevention Registry www.endALZnow.org/. Studies can also be found within the ClinicalTrials.gov study database, https://clinicaltrials.gov, under the search criteria 'Recruiting' and 'Alzheimer Disease'.

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