Recommendations on pregnancy, childbirth and aftercare in epidermolysis bullosa: a consensus-based guideline

Recommendations on pregnancy, childbirth and aftercare in epidermolysis bullosa: a consensus-based guideline - Dystrophic Epidermolysis Bullosa Research Association (DEBRA) International

Purpose and scope:
This article summarizes recommendations reached following a systematic literature review and expert consensus on the management of pregnancy, birth and postnatal care in women with EB. This guideline is intended to inform and support women with EB and their partners, and aid decision‐making by clinicians managing patients with EB.

Intended guideline users include women with EB and their partners, dermatologists, obstetricians, anaesthetists, neonatologists, paediatricians, nurses, allied health professionals, family practice physicians and psychologists.

Clinical practice guideline aims:
- To improve the effectiveness and quality of pregnancy and childbirth care for women of reproductive age with EB.

- To decrease variation in clinical practice internationally.

- To provide evidence‐informed recommendations that will provide measurable standards of care and benchmarks against which practice can be audited.

- To highlight quality‐improvement initiatives linked to the clinical practice guidelines (CPG).


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