Data from multiple sources - Curated by Toby Galbraith - Last updated 04 January 2017

Latest news articles

Added 15 days ago News trends

The way ahead for Cystic Fibrosis

Cystic fibrosis is an inherited disease that eventually leads to severe damage in the lungs. It is caused by a mutation of the gene responsible for the cystic fibrosis transmembrane conductance regulator (CTFR) protein.

Added 3 months ago Drug news

Successful Phase III study of Orkambi (lumacaftor/ivacaftor) in children who carry two copies of F508del mutation cystic fibrosis.- Vertex Pharma

Vertex Pharmaceuticals Incorporated announced the results of a Phase III study of Orkambi (lumacaftor/ivacaftor) in children with cystic fibrosis (CF)...

Added 3 months ago Drug news

Final data from PROGRESS study of Orkambi (lumacaftor + ivacaftor) for cystic fibrosis patients with F508del mutation- Vertex

Presentations given at the 30th Annual North American Cystic Fibrosis Conference (NACFC) include final data from the PROGRESS 96-week extension...

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Learning Zones

An epgonline.org Learning Zone (LZ) is an area of the site dedicated to providing detailed self-directed medical education about a disease, condition or procedure.

Cystic Fibrosis

View disease awareness information, treatment options and European Cystic Fibrosis Society best practice guidelines

Visit Cystic Fibrosis

Bedwetting

Essential screening, diagnosis and best strategies to manage bedwetting

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Guidelines

Diagnostic sweat testing: the Cystic Fibrosis Foundation guidelines.

The Cystic Fibrosis Foundation (CFF) accredits cystic fibrosis (CF) centers, located in teaching and community hospitals nationwide, which provide comprehensive diagnosis and treatment for people with CF.

Added 15 days ago

European Cystic Fibrosis Society Standards of Care: Best Practice guidelines

Specialised CF care has led to a dramatic improvement in survival in CF: in the last four decades, well above...

Added 2 years ago

Culture-based diagnostic microbiology in cystic fibrosis: Can we simplify the complexity?

This review summarizes state-of-the art culture methods and makes recommendations for addition of non-culture based methods in the diagnostic laboratory.

Added 3 years ago

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Journal articles

Cystic fibrosis: genotypic and phenotypic variations.

Cystic fibrosis (CF) is a common genetic disorder in the Caucasian population. The gene was identified in 1989 on the basis of its map location on chromosome 7.

Added 14 days ago

Decade-long bacterial community dynamics in cystic fibrosis airways.

The structure and dynamics of bacterial communities in the airways of persons with cystic fibrosis (CF) remain largely unknown.

Added 14 days ago

Patterns of GI disease in adulthood associated with mutations in the CFTR gene.

There has been tremendous growth in the population of adults with cystic fibrosis (CF).

Added 14 days ago

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CME

Treatment Optimisation in Chronic Lymphocytic Leukaemia

Accrediting body
Union of European Medical Specialists (via European Accreditation Council for CME)
Credits available
1
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1
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