Useful Links

Within this section, you will find links to external sites that provide accurate information for healthcare professionals that specialise in the treatment and research of cystic fibrosis. 

  • Cystic Fibrosis Foundation (USA)

    The Cystic Fibrosis Foundation provides support for people living with cystic fibrosis. The foundation also provides funding for research, treatment access and care options. United by one common goal - Finding a cure for cystic fibrosis.

  • Cystic Fibrosis Mutation Database

    The Cystic Fibrosis Mutation Database collates genetic data from clinical papers and provides this on one site. This shows worldwide distribution and the prevalence of many genetic mutations from clinical publications.

  • Cystic Fibrosis Trust (UK)

    The Cystic Fibrosis Trust is the only UK wide charity which aims to make a difference daily to people living with cystic fibrosis.

  • European Cystic Fibrosis Society

    The European Cystic Fibrosis Society has been set up for the international scientific community and clinical professionals for the continued improvement of sharing of experience and knowledge for cystic fibrosis patients and treatment of the disease.

  • UK NHS Choices Cystic Fibrosis

    The NHS choices website aims to provide accurate information for patients suffering with cystic fibrosis, with real patient stories and current clinical trials.

  • Online Mendelian Inheritance in Man (OMIM)

    The OMIM provides in depth information with regards to genotypes and phenotypes of cystic fibrosis. The site also provides literature reviews of many publications that have supported the current state of disease understanding and treatment processes.

  • Clinical and Functional TRanslation of CFTR (CFTR2)

    The CFTR2 site provides researchers, physicians and the general public with information on cystic fibrosis genetic mutations.


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